Ovarian cancer and genetic counseling/testing: Who is being referred? Survey

Survey
 

The goal of this survey is to find out whether or not people with ovarian cancer and their close relatives have been offered genetic counseling and/or genetic testing.  In order to do this, we are sending out this short online survey through online support groups for ovarian cancer.  We aim to reach as many people as possible nationwide (or even worldwide) with either a personal history of ovarian cancer, or those who have a relative with ovarian cancer.  We hope to better understand the experiences of people with ovarian cancer or a family history of ovarian cancer, regardless of whether or not they have been offered or undergone genetic testing.

If you have ever been diagnosed with ovarian cancer, or if you have a mother, sister, or daughter who has been diagnosed with ovarian cancer, you are eligible to participate in our survey.  You can be any gender to take our survey, but you must be 18 years old or older.

This is a voluntary 26 question survey, and it will take about 15-20 minutes to complete.  All answers are completely anonymous with no risks to the participants.  You may exit the survey at any time.  Questions marked with an asterisk (*) are required.  Please only take this survey once.

This study is being conducted as part of a Master’s thesis requirement by a student in the Department of Genetic Counseling at the University of Arkansas for Medical Sciences and has received Institutional Review Board (IRB) approval: Protocol #204292. 

If you have any questions about the survey, please email us at ccook2@uams.edu
We greatly appreciate your responses!